Rheumatiod Arthritis Support Group

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Rheumatiod Arthritis Support Group

Postby Orlie » Wed Sep 01, 2010 1:29 pm

Hello People,
I would like to start a support group for those of us out there suffering (or not) but have been diagnosed with RA. Those of you out there that have RA know all too well how difficult it can be to live with. I am hoping that we can encourage one another in a positive way. Share our successes and help one another stay on track with this diet. I look forward to your humor, ideas or feedback! Good Day to you ALL.
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Re: Rheumatiod Arthritis Support Group

Postby Orlie » Fri Sep 03, 2010 1:14 am

Hello again,
I was hoping to open dialogue from those of you with or loved ones with RA and what you have done to help yourself or them with this diet or any other encouraging holistic paths.
This diet has helped me (when I follow it) even though it can be very challenging to say the least in social situations that seem to always revolve around food that is typically not the best choices.
I would LOVE to hear your stories.
Thanks.
Orlie
 
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Re: Rheumatiod Arthritis Support Group

Postby Orlie » Fri Sep 03, 2010 1:55 pm

Thank you Carroll for sharing you and your daughter's journey. I am so very sorry to hear about how difficult it has been for her! What a brave young lady she must be.
I am very interested in hearing more about this LDN you speak of, what is it, and where did you hear about it?
As far as you daughter's dillema about the fish oil, did you try her on flaxseed oil or black currant seed oil instead? Those are both anti-inflamitories.
I am excited to hear back from you.
Have a wonderful weekend, and I am sooo VERY happy to hear that your daughter has finally found relief.
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Re: Rheumatiod Arthritis Support Group

Postby Clary » Fri Sep 03, 2010 2:08 pm

"To be more specific, about 70% of people with the most common form of inflammatory arthritis, rheumatoid arthritis, can expect dramatic benefits, and often a cure, in less than 4 weeks of diet change." --Dr. McDougall.

I encourage anyone with any diagnosis of any arthritic problems to read EVERYTHING at this link:
http://www.drmcdougall.com/med_hot_arthritis.html
"LIFE always begins again." --Edmond Bordeaux Székely
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Re: Rheumatiod Arthritis Support Group

Postby Burgess » Sun Oct 10, 2010 7:41 pm

Here is my overall Star McDougaller story: http://www.drmcdougall.com/stars/burgess_laughlin.html

Here are the problems I faced: http://anti-itisdiet.blogspot.com/2007/ ... ation.html

Here is the main solution, a radical change in diet, that I found: http://anti-itisdiet.blogspot.com/2007/ ... ution.html

I also had to do posture-correction exercises: http://anti-itisdiet.blogspot.com/2007/ ... erapy.html

And, now, after six years of experimenting with foods, here is what I eat: http://anti-itisdiet.blogspot.com/2010/ ... i-eat.html
Burgess Laughlin, Star McDougaller
My books: http://www.reasonversusmysticism.com
My health weblog: http://anti-itisdiet.blogspot.com
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Re: Rheumatiod Arthritis Support Group

Postby Burgess » Mon Oct 11, 2010 7:41 pm

Jellen wrote:Spinach--any worries about oxalic acid with your kidneys?

Mixed veggies--none containing beans, corn or peas?

Olives--high sodium content, processed?

Taurine--do you take it? ...

If you Cron-o-meter your daily diet of 50g. protein, how much methionine and Cystein do you get daily? ... Wonder if the fact that the foods will be cooked, will change anything?

Did you take aspirin for pain and for how long?

- I have never worried about oxalic acid. Should I? I have not noticed any short-term adverse reaction. Is there reason to worry about it in the quantities normally eaten?
- The mixed vegs I buy are the "Tuscan" mix, the "California" mix, and the "Stir-fry with Asparagus" mix. They don't have beans in them, except for a small amount of green beans in the stir fry. Since green beans are in the gray area, I can live with a small amount, at least for now. If I decide to tighten further, I can avoid them.
- I don't understand your question about olives. I have recently stopped eating them simply because they are expensive. Most of the food I buy is processed to some extent -- washing, trimming, blanching. I am not worried about that minimal level. Since I use no other salt, I don't worry about the salt in olives. I do eat two canned goods that have salt in them: beets and sauerkraut. The total amount of salt consumed is small. I am salt-sensitive, but not at these levels.
- I don't take Taurine. I don't know what it is.
- I haven't calculated the amounts of the various amino acids. I haven't seen any pattern in particular amino acids and my reactions, but if I have the money someday, I hope to explore that with a registered dietician.
- I took aspirin occasionally, more for bursitis than joint problems, but I have always tried to avoid it. If I have a leaky-gut problem, aspirin may make the problem worse even while relieving the pain.
- Dr. McDougall, perhaps in his newsletter or other description of the elimination diet, suggests that cooking breaks down proteins, thus possibly reducing a reaction. I didn't seen any difference, and not cooking everything was my first step in the ED.
Burgess Laughlin, Star McDougaller
My books: http://www.reasonversusmysticism.com
My health weblog: http://anti-itisdiet.blogspot.com
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Re: Rheumatiod Arthritis Support Group

Postby Burgess » Tue Oct 12, 2010 5:06 am

Jellen wrote: I'm using only the posted fruit, veggies on the elemination chart in the newsletter Deec. 2002. It says, all green and vegetables including:

Does this mean I can only use those on that list?
No. It means what it says, "all green and yellow vegetables, including ...." the ones he lists as examples.

Based only on my own experience, I would say don't worry about any vegetables for now. Exceptions might be the "nightshades" -- tomatoes, eggplant, and white potatoes. Some individuals say they have problems with them. I didn't and I am not convinced that others have. However, note that two of them are fruit (they contain seeds). To be cautious, you might test them later.

Trying to correlate foods with arthritic pains is very chancey. Too many other factors might be having an effect too: especially weather changes and defective posture.

Unless a change in level of pain is dramatic, and throughout your body, it is difficult to draw conclusions. But you have to try. And don't be worried if for some foods tested you get mixed or indefinite results. Just add that test food to your records under "Not Sure." Even after developing this diet for myself over a six-year period, there are still foods that I am not sure about, but avoid just to be safe. And I do my posture exercises every day. Tedious but effective.

Would I need to work that in later over 2 days just to test it?
For reasons I explained on the site,

http://anti-itisdiet.blogspot.com/2007/ ... foods.html

I tested one food per week. Two days at the beginning of the seven days was for actually eating a particular test food. The rest of the week was for seeing if I had a reaction and for letting the system clear if I did have a reaction.

You will need to go through the first week without any test food, just the presumably safe foods. If you see any improvement, or at least no consistent worsening, then you could add a test food. Personally, I would add the presumably safe foods first, to build up the range of foods you are eating.

Based only on my own experience, I would avoid at first all seedy foods such as grains, legumes, nuts, and seedy fruit such as figs, tomatoes, and possibly even cucumbers and summer squash.

The process can be long and difficult. Best wishes for that journey.

P. S. -- If you haven't already, be sure to look through the titles on my site, in the archives and they key words list.
Burgess Laughlin, Star McDougaller
My books: http://www.reasonversusmysticism.com
My health weblog: http://anti-itisdiet.blogspot.com
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Re: Rheumatiod Arthritis Support Group

Postby Burgess » Tue Oct 12, 2010 8:27 am

Jellen,

Your pattern of adverse reactions (from skin tests, in your case) is radically different from mine. For that reason, I don't think my experiences will do you any good.

Suggestion, for this thread of discussion: Make three lists of all the foods you have tested: adverse reaction, no adverse reaction, not sure.

Then look for the common denominator for the adverse reactions. What do they all contain that the foods in the second category don't contain?

I have no further suggestions to offer.

P.S. -- No, I am not using any supplements other than B12 right now. I have not found any supplements to be effective. The only solutions for me were posture correction and eliminating certain foods (all animal products and all seeds).
Burgess Laughlin, Star McDougaller
My books: http://www.reasonversusmysticism.com
My health weblog: http://anti-itisdiet.blogspot.com
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Re: Rheumatiod Arthritis Support Group

Postby Orlie » Sat Oct 16, 2010 2:39 pm

Hi Burgess,
You talk a bit about your posture exercising. You share more about it?
Thanks!
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Re: Rheumatiod Arthritis Support Group

Postby Orlie » Sun Oct 17, 2010 12:11 pm

Opps! I just checked out your website listings and saw the one for posture. Thanks anyway, and hope you have a great weekend.
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Re: Rheumatiod Arthritis Support Group

Postby DeeAnn1231 » Wed May 04, 2011 6:36 pm

Orlie, are you still around? I have RA and would love to join your group here!
If I wake up breathing, then it's a good day!
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Re: Rheumatiod Arthritis Support Group

Postby Southernbelle1 » Tue May 05, 2015 12:41 pm

I would love to join this group also. I was diagnosed with RA and Sjogren's Syndrome in November 2014.
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Re: Rheumatiod Arthritis Support Group

Postby Jebowles1 » Mon May 11, 2015 8:21 pm

Thanks for starting a group for those of us who have had the unfortunate experience of being diagnosed with RA.

I am new to doctor McDougall's forums in general and to this group specifically.

Now that I have become familiar with Doctor McDougall's approach I can see that my late onset RA probably began one year earlier when I decided to go to a plant based diet. My cholesterol was high, I was beginning to experience some of the adverse effects of statin drugs for lowering cholesterol and my blood pressure was borderline high.

I replaced cow's milk with a combination of almond milk and soy milk. After reading the doctor's elimination diet I began by eliminating the foods I had begun when going vegan. When I eliminated almond milk I saw an almost immediate improvement. My energy level increased the next day. Since Then I have adopted the full elimination diet
I find now through systematically adding foods one by one as suggested that two foods I ate almost daily were also problems.

I recall that even as a teen I was allergic to raw nuts but had no difficulty with roasted nuts so I fault myself for failing to research how almond milk is manufactured before I took friends recommendations to use it.

I'm wondering if this is the right forum to begin.

I learned that one of Doctor McDougall's Stars received much help from the forum she used.

Thanks again.
Jim
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