MS & Ehlers-danlos syndrome?

[dumbbunny]

Since all these various diseases
seem inter-connected somehow.
(To me any way)
Have or has anyone seen any
Research or connection between
MS & Ehlers-Danlos syndrome?

[lilypad]

I have Ehlers Danlos Syndrome- Hypermobility Type. I also have lordosis of my spine because my back muscles aren't strong enough to support my lower spine.

I was born with 'low muscle tone', and this caused me to walk late- at around 18 months. I didn't crawl, but pushed myself around on my back, I've been told this is because I didn't have the muscle strength to lift my head up. This is I suppose a neurological issue, as muscle tone is different from 'gym muscle strength'.

People with EDS can have neurological issues especially if they have neck and spine abnormalities which can lead to Chiari malformations. Also we tend to have issues with our nervous system.

[dumbbunny]

Oh thank you so much for replying
So how are you doing.
Are you & have you been following this
WOE-diet (whatever ya call it)
Very long? Strictly?

[lilypad]

I've been following this WOE since around September 2013, although I was a vegan for around a year before discovering things like China Study, which is how I found this WOE. I began to notice massive differences in my health since giving up dairy (for ethical reasons) and became interested in the health benefits. I was a 'junk food vegan'.

I'm going to be honest that I've been 'on and off' and have slipped up although I never ate animal products. But for a long time I've been strict and I've been doing the Mary's Mini diet recently and feeling great on it.

I feel a lot better since eating this way- fatigue is a huge issue for people with EDS and eating loads of starches/ carbs has been great.

This WOE has done nothing for my Ehlers Danlos though, my joints will still be damaged no matter what I eat. The only thing that's helped is giving up gluten, that helped with some of the muscle weakness.

I've just done some googling now, and there's quite a lot out there about MS and EDS. I had no idea.
https://www.youtube.com/watch?v=OD6WiSzHRoA

I know that a lot with EDS have issues with their immune system and can get things like Chronic Fatigue Syndrome etc.

[dumbbunny]

Oh thank you thank you thank you
For that link

[dumbbunny]

Wow..just noticed where your from.
Lol.long way from Minnesota USA
Anyway. .have you had to be on prescription meds
For EDS?
Operations?
Tried listening to her & followed a few other sites.
I have a child with EDS.
Back@ birth I was told I had a
"Floppy Baby" .
I thank you again for that link.

[lilypad]

Yeah, I was 'floppy' as a toddler. I was only diagnosed a few years ago (I'm 32 now) and that's when I began physiotherapy.

No, I've not had any operations. I don't take meds other than painkillers. I do take Turmeric for inflammation and to treat the 'soft tissue injuries' I'd get.

I've got problems with my eye muscles too.

I would recommend trying a gluten free diet, it's common for people with EDS to have gluten allergies that worsen their symptoms.

Have you seen this forum? There are many parents of children with EDS posting.
http://www.hypermobility.org/forum/inde ... 7689e30aaa

What have they recommended for your son? I do Pilates and avoid exercise that is hard on my joints, so I have an exercise bike.

[snapple]

Was very low on the apgar scale (and very premature), diagnosed with ms 13 years ago.

[dumbbunny]

WOW. ~ THANK both of you..

[dumbbunny]

Lilypad
~kid hasn't ever been meds for the ehlers-danlos.
..I Refused many different* options at different times for him
~back when he was young. .
Ritalin ~school figured he ADHD.
NO. NO. & NO~ I refused. .
I had known Too many on that CRAP
that went on to
worse stuff & died.
Yes it's been a: :: journey: :: to put it mildly.
He's had operations.( 2 hernias & 1finger & a knee
& MANY dislocations (subluxations )
Even before an (official) diagnosis on some)
Bad Bad mommy wouldn't let him be in Sports.
BAD BAD mommy. Errrrr
Anyway. Hopefully things gonna get better.
Now!!!
LOL. ..potatoes working good for him. LOL
Thank you again.

[dumbbunny]

snapple
MS. & EDS?
Or just MS?
And how that been for you?
Thank you for this information. .
Things starting to make
Sort of more Sense for me.

[dumbbunny]

lilypad
Tumeric?
How to use that?