by dlee » Tue May 19, 2015 7:58 pm
Lesliec1 just re read your amazing success story....congrats.
I really don't have anything like what you went through. And I feel a little sheepish complaining.
My husband has had and presently has a similar thing going on right now. Strangely enough he has been diagnosed with GPA Granulomatosis with polangytis formerly ( Wegener's )- a rare autoimmune disease something like RA only a bit different.
1 in 2 million chance of getting it! He too went through some "Natural remedies, and an ENT, as he was having a lot of sinus issues too. Allergy testing etc. Months went by, They both described elimination type diets. He was steadily losing weight he didn't need to lose, and symptoms getting worse and worse. To where he could barely walk, pains in all joints, swelling in legs and ankles etc.Vasculitis which is red sores appearing suddenly on legs. He felt like he was 100, actually 68, Anyways finally in desperation found a Rheumatologist,very well known, and chief Rheumatologist in Mex DF , also a very kind , caring guy. After 3 hours consultation and lots of lab tests he was diagnosed with GPA .
He started taking Prednisone and Methotrexate and a few Vitamins . and calcium to buffer the other toxic stuff. After 24 hours he started walking better and within a few days he felt like a new person.....so it's been a month ,he's almost pain free, and more lab work is showing the immune system is getting better.....so fingers crossed that this will work. They are cutting him back slowly on the prednisone....hoping he will continue to improve......that and the MCD diet of course.
Sorry this is sooo long.
So for me back to the ED and I will continue to follow it strictly. Thanks for listening, Dlee