I am Lucy. I am 40 years old. I was just diagnosed with Limited Scleroderma.
I have combed the net gathering info on this. I have emailed Dr. McDougall. I have gone vegan.. but of course, not just plain old Coca Cola and potato chips vegan, but MCDOUGALL Vegan, which we all know means no oils, fats, etc...
Ok. as difficult as that is, I can deal with it, because my health is worth it.
BUT NOW.. I read all of this about GLUTEN and its connection to autoimmune diseases....
and it seems that Gluten is in, Oh, I dont know.. EVERYTHING.
So, no animal products. No oils. Now NO GLUTEN?
It sounds like unless I am going to order steamed broccolli and a baked potato every time I go out ( and that includes at breakfast time ) that restuarants are a thing of the past. ( Trying to eat out low fat was murder; going vegan cut my choices down to weeds, bread and potatoes-- which unlike most people here, I really dont care much for potatoes unless they are prepared in an un-healthy way-- but now the bread / oatmeal / pasta category is out as well, so I cannot even fathom what restaurant eating will now become )
I went out yesterday and bought lots of rice milk... only to read a few minutes ago how rice milk has a small amount of gluten in it???
I want to eat healthy. I want to stop the Scleroderma in its tracks.
I like to go out to eat without being forced to eat plain baked potatoes and a bowl of dry lettuce all of the time.
I like to shop without paying large amounts of money for weird, gluten free products. ( which is a joke anyway, because it seems like everything that I pick up has some other forbidden ingredient in it, like oil or egg whites or meat )
If I have to be a gluten free vegan -- a gluten free, fat free, all natural, chemical free vegan-- thats fine, but I can tell you right now, other than eating nothing but lettuce and baked potatoes for the rest of my life, I swear I have no clue what to eat. ( I was going to say beans, but no more than a cup of beans per day because they contain too much protien????? )
Oh, and not to mention the whole gluten coatings on pills, gluten in hair mousse and gluten in face creams thing...
I cant talk to anybody around me / in my family about this; they all thought I was mentally ill when I went low fat. When it came to vegan, I swear, I think I would have been better off announcing that I was a puppy kicking satanist.. there is no way that I can tell them about the gluten issue. They already think I am a mentally ill, weirdo food fanatic, and I cant lie, if I were on the outside looking in, I would think the same.
Vegan, ok.. low fat, ok.. Gluten free, ok... but to be ALL OF THOSE?
How do you get thru the day, never mind LIFE, being a Gluten free McDougaller?
And not only that, but how do I know for sure that Gluten is even a problem for me? should I just assume it? ( considering the Limited Scleroderma diagnosis.. but how do I know it was the Gluten that aggravated or brought that on? maybe it was meat or other animal products? )
1) How do I find out if its really needed for me, for my health / condition, to give up Gluten?
2) if it is found to be something I need to give up, how does one live a Gluten free, McDougall life and subsist on something other than potatoes? (I could live the rest of my life and never see another potato and be very happy )
If I sound frustrated, I am. i will do what is needed for my health, but im telling you, there is not much left on the food list that I can give up and still shop in normal grocery stores and go out to eat every now and then.
For example, its Friday night. the loved ones will want to go out to dinner:
Chinese? oh no. MSG. Meat. Oil. Noodles. I am tired of ordering 3 pea pods, a carrot and a garlic clove,-- all steamed -- and paying $10.00 for the priveledge. that is no longer chinese food. the joy is gone.
Pizza? well, before i could have said SURE, pizza is fine, just hold the cheese and put extra veggies on top.. but now the crust is OUT. that leaves 3 slices of onion dunked in some tomato sauce. Pasta? not any more.. that leaves just a puddle of tomato sauce-- IF and only IF-- that tomato sauce contains no oil! again, the joy is gone.
Whats left to eat? where is left to go? everything is MEAT, BREAD or PASTA. I can find all of the veggies I want.. all coated in some sort of DAIRY or OIL based sauce or dressing.
I am now back to STEAMED VEGGIES and a PLAIN POTATO. I am sorry, but I refuse to pay $10.00 ( or more ) for that in a restaurant. I can make it at home for about $2.00. I wont enjoy it either way, but at least at home, I save $8 or more dollars.
What about AFTER dinner? cant go out for ice cream. cant go out for sorbet.. who knows if gluten is hiding in it.
Ok.. what about hitting up the coffee bar?
Uh, no. Caffeine is out. Soy milk? contains oil and fat, and tastes like the cats behind anyway. Sugar? not your buddy. Artificial sweetener? I dont want to grow another head.
Ok, so plain, black decaf.. MMMMMMM!! gross!!
again, I am not paying $4.00 for the priveledge of drinking a cup of hot black cr*p. I can do that at home for about 50 cents. ( but wait. not so fast.. how did they remove the caffeine from that coffee? bet they used chemicals....)
Back to steamed broccolli, a baked potato and water.
I just want to live, be healthy, and enjoy the food I put in my mouth without having to make a major federal case out of every single meal.
I need some help. any advice you have will be greatly appreciated.
( please, no flames.. my health is worth it for sure, but this Gluten thing is the last straw-- not only that, but if I ever do master it, I just KNOW that 3 years from now I will find out that there is some other unknown evil food-- that was previously thought to be healthy-- that I will then have to give up )
Things like this is what make people chuck it all to the wind and eat whatever, whenever.