I am brand new to the McDougall Discussion Board.
Let me see if I can briefly introduce myself.
I received a diagnosis of IBS in college a few years back. My dr now says I have some kind of malabsorption issue, but a blood test said I don't have celiac so she is not willing to consider I might have a false negative blood test. I have chronically low calcium, iron, potassium, vit. D ect. Undigested food in my stools that float. Ect. I was not convinced.
My son has a number of developmental issues, neurological issues, mild epilepsy, GERD, failure to thrive, loose stool issues, aspergers type symptoms, apraxia, malabsorption issues ect.
My sister had horrible stomach aches daily. She decided to go gluten free at the same time we did a few months back. She is doing so much better. Her blood tests for celiac prior to going gluten free were negetive also. She was desperate and tried it anyway and it has helped her.
My son and I are gluten free, soy free, vegans for two months now. I think it is going well. I have a few oops moments where me may have had gluten accidentally. I am not sure, but I think I could relate feeling sick to the accidental intake of gluten. I think, but am not absolutely positive it is helping.
My son was sick in August and he went from 30 to 28 lbs. He is up to 32 lbs 2 months later. I think that is significant. He is 4 1/2 years old. His stools seem to be less frequent and I rarely see undigested food in them. But they are floating which they never did before. I thought floating stools means fat malabsorption and is a bad thing. I have a ton of questions.
What is the best way to get a diagnosis? What kind of doctor do we see? We had a GI specialist for my son and do not wish to ever see that doctor again!
Can a primary care physician order all the necessary tests?
Both of our blood tests previously came out negative.
I am doing fine cooking this way at home. Going out is hard. I question there are still foods that need to be removed, but can't figure out what ones. My son struggles with communication. I have to follow his body language, he his sensory processing disorder also causes him to miss read his feelings of pain. It is complicated to figure out what is really the cause of his issues.
So far I am on my own. No doctor to ask questions to. They do not agree with my gluten free testing time the last few months. But he has gained weight!
I really want an accurate diagnosis. Figuring out food intolerance's is a night mare. So hard. I am sure many of you can relate.