I am happy to see that you are staying positive and I pray everything will improve for you. Yes, Dr's are often wrong. Are you young? Just wondering. Pretty scarey something could happen to you so quickly without warning.
I am 44. I was diagnosed when I was 43. I thought, at the time of my diagnosis, it was without warning. I just didn't know how sick I was, but looking back ~ I was in denial. Sick had become the normal and I had been feeling sick so long that I didn't know what well felt like.
There is no clear indication from my doctors as to what caused my failure. They will not say it is diet. I have attempted to discuss it a few times. However, there is a link between Celiac, Crohns and Renal Failure. I may have had Celiac for quite some time without even realizing. I just ignored the symptoms. It is quite possible that the Celiac and/or Crohns contributed to the renal failure. It is also possible that my tendency to fad diet was a contributing factor. (Atkins) My doctors, knowing all these facts, say 'no' but I have a hard time believing that.
That is where my hope comes in. They are not sure how much of my kidneys are damaged versus inflammed. Originally they said that there was about 80% inflammation and 10% damage. Now they are reversing those numbers based on blood work ~ however not all of my labs match up with that. Most of my labs actually point towards the first set of numbers. They are stumped. They continue to just shake their heads that I am not much sicker than I am right now. According to some numbers, my kidneys are functioning at a little less than 10%. According to my health ... they are functioning rather normally. It is a mystery!