Hey Colleen, and anybody else thinking they might be having a gluten problem...one thing about testing I've read...NONE of them are entirely accurate...I think the poop test from Enterolab might be more accurate than the genetic test, etc., but still not absolutely 100%. The most definitive "test" is really a person's response to a gluten free diet.
The frustrating part about it, though, is that being 100% gluten free, or as close as possible (cross-contamination with flour dust or crumbs happens if you EVER eat out or live among gluten eaters), is not easy...(although I am happy to report that with time it does get easiER) and it could take several months to really see results.
Some people seem to be pretty lucky, though, from what I've read, especially if they are under 30 years old...seems they usually respond more quickly to a gluten free diet (although I've read stories on message boards where sometimes even small children can take a while...but usually the younger, the quicker)--to make things even more difficult, if you're anything like me...my response to the diet was so back and forth...better one day (or even PART of a day), then suddenly worse again...back and forth and very, very gradual...and in ways at times I felt better from the old usual complaints, but at the same time NEW, weird different things would happen...I mean...I KNEW change was happening...but it was slow, confusing, etc.
So...I'm just saying...diet is the best test, but it does take time, effort, patience (except if you're lucky and start to feel better within the first month!!!)--I didn't feel I had the money for testing such as Enterolab, and didn't go to any doctors (would be cheap for me cuz of insurance) because I just have never had the experience of doctors listening to me or being very good at diagnostics, and have even found them to be overly aggressive in treating WRONG diganoses and getting people into messes from all of that...so...I just opted for the long ordeal of testing my gluten suspcicions through diet alone.
As you may know...I've said it before...I did try back in 2001, and did things all wrong and thought I should feel better quicker...really screwed it all up and came out thinking gluten was not the problem. I had 5 more years to "educate" myself (and see my health go down hill!!!!) before getting it together and having success gluten free.
So...there's my thoughts on all of it fer ya
-- If you try gluten free...be very diligent, even paranoid about ANY source, or possible source (when in doubt, do without!--your new motto) of gluten contamination.
Be patient and allow at least 6 months to go by before you decide if you are getting better (unless you're lucky and it goes quickly!)--by the time I'd competed a paranoid 6 months of as close to 100% gluten free as I could possibly manage...I was just BETTER...not really WELL. At 7 months, I saw improvemnet happening more rapidly...during the 8th month or early into the 9th month...I had an embarrassing situation in which I felt almost forced, to avoid rudeness, to eat vegan soup at someone's house...for 3 1/2 weeks I was kicked in the butt with surprisingly bad symptoms...so much so that I was starting to wonder again if gluten was even my problem in the first place...I just had to wait it out, reasoning with myself and reminding myself that I WAS BETTER before I'd eaten that doggone %$## soup...anyway, after 3 1/2 weeks went by...that gets me to my current 10th month gluten free (outside of that stupid accident--I guess that's what it was)--now I am REALLY feeling very, very GOOD! So that's how it seems it can go...but I hope for you it goes quicker and better!
Here's a link to the ingredients lists I use--I carry the list when I shop, and then I re-read my labels as I'm putting the foods away...and then I re-read the labels again before I open the foods to use them in recipes.
Link to allowed and forbidden ingredients lists:
http://www.celiac.com/st_main.html?p_ca ... 6381587.28
Let me know how it all goes!